Case study
Finding the “needle in the haystack” for rare disease scientific engagement
Medical affairs engagement in rare disease
In ultra-rare disease, surfacing healthcare providers (HCPs) caring for potentially eligible patients can be like searching for a needle in a haystack. Claims-based alerts may arrive too late or lack the clinical detail medical affairs teams need to recognize relevant patterns. When the patient population is exceptionally small, finding even a few previously unknown healthcare providers can open meaningful new opportunities for scientific engagement.
A leading life sciences company added clinical signals from Truveta Data to its existing approach, creating approximately 10 alert definitions that combined lab values, medication dispensing, and comorbidities to dramatically increase their provider alert volume. The approach surfaced at least three new HCPs that the company’s existing process had not found, expanding the team’s ability to engage providers caring for this difficult-to-find patient population.
Download the case study to explore:
- How Truveta Data helped identify HCPs the company’s existing process had not found.
- How aggregated NPI information connects relevant clinical signals to providers for prioritized scientific engagement.
- How EHR-based lab, medication, and comorbidity data support more precise provider alerts.
- How continuously updated data and iterative alert refinement improve reliability over time.
- How Truveta protects patient privacy while enabling insights in ultra-rare disease.
