Truveta Community Standard
Last Updated: May 2026
As a user of Truveta Studio, you agree to the following rules.
1. Eligibility: I understand that I must be at least 18 years old to use Truveta, and that I may only have one account, which must be in my real name.
2. Professionalism and ethics: I will use Truveta in a professional manner, and, if I am accessing Truveta through an organization that is sponsoring Truveta studies (a “Sponsor”), I will always adhere to the ethical principles of my Sponsor. I will act collaboratively and constructively if I engage with others on the Truveta platform.
3. Library participation: Users who conduct studies in Truveta through a Sponsor may contribute studies or associated study materials (such as the definition of a medical condition or the specification of a population to study) to Truveta Library. I understand that if I make such contributions to Truveta Library, any such contribution may be used freely by other users within their Truveta studies. I understand that all contributions are provided “as is” and I will bring my own professional judgment to bear in employing contributions from others in my research.
4. Patient privacy: I understand that maintaining the privacy of data about patients is paramount. I understand that Truveta Data includes special categories of sensitive personal data, all of which is de-identified before being made available in Truveta. I will not upload any personally identifiable information to the Truveta platform. I understand that certain Truveta Data modalities, including aggregate-only datasets and other highly sensitive data types, require heightened privacy and security considerations, and I will not use such data in any way that will compromise patient privacy. I will never attempt to re-identify any de-identified patient record, or enable anyone else to do so, including through linkage with other data sources or analytical techniques designed to discern or reconstruct individual identities. If I become aware that anyone has re-identified or attempted to re-identify any de-identified patient data or taken any other action with de-identified patient records that potentially undermines patient privacy, I will report this immediately to the general counsel of my Sponsor or to Truveta at the address below. I understand that the data provided by Truveta may not be used to target advertising to patients, physicians, or anyone else.
5. Truveta user privacy: I understand that Truveta will collect and handle information regarding my use of Truveta in accordance with the accompanying Truveta Services Privacy Notice. I understand that if I make contributions to the Truveta Library, my name and professional affiliation will be associated with my contributions and accessible to others.
6. Security: I understand that I am responsible for using Truveta and the data it provides in a secure manner. I will keep my password confidential and never share it with anyone else. If I extract any de-identified patient data from Truveta, I will adhere scrupulously to the policies and procedures of my Sponsor to maintain the information in a secure fashion.
7. Sharing other content: I understand that Truveta enables users to share other content, such as comments on the work of others, and I agree irrevocably that Truveta may use, copy and display any such content freely in connection with Truveta’s services. I understand that I (or my Sponsor) retains ownership of any content I share on the Truveta platform. I will not share any content that is hateful or incites violence; is obscene; is knowingly false or misleading; is defamatory; or that I do not have the right to share with Truveta. Truveta reserves the right, in its sole discretion, to delete content as it deems necessary or appropriate, such as content that violates this Community Standard. I understand that other users may share content that is inaccurate, misleading, offensive or otherwise harmful, and I agree that I will not attempt to hold Truveta responsible for any such misuse of Truveta’s services. In some circumstances Truveta may be required by law to remove certain content. We provide a policy and process for complaints concerning content posted by our users.
8. Feedback: I understand that I may provide feedback to Truveta regarding its services and that Truveta may use such feedback without restriction or obligation.
9. Generative AI: I understand that the Truveta platform may include generative artificial intelligence capabilities, and that the output of any such generative AI may not always be accurate. I agree that I will apply human judgment and professional experience in reviewing the output of generative AI, and I will not rely upon any AI-generated content for any consequential decision.
10. Clinical studies: I understand that if I access Truveta through a Sponsor, I may use Truveta to identify sites of care or treating clinicians for patients meeting enrollment criteria for clinical studies (including clinical trials). I will not otherwise study any healthcare system or its employees or clinicians, without the express prior written approval of the healthcare system.
11. Guest researchers: I understand that if I access Truveta through a Sponsor, I may use the Truveta platform only to conduct studies on the medical conditions that the Sponsor that invited me to join is studying. I understand that I do not get any rights to use Truveta Data or deliverables. I also understand that information regarding my use of the Truveta platform will be accessible to my Sponsor.
12. Proper Use: I will not (a) work around, disable or otherwise tamper with any technical or security limitation in relation to Truveta Services; (b) use Truveta Services in violation of or to circumvent any laws, or in violation of this Community Standard; (c) upload to, or use the Truveta platform to distribute, any viruses or other malicious code; (d) interfere with the proper operation of the Truveta platform, or prevent access to or use of any Truveta Services by other users; (e) access Truveta Services using automated means other than through application programming interfaces provided by Truveta for this purpose, or (f) access or use any Truveta Services to develop or offer a product or service, including, but not limited to, a data model or AI/machine learning model, that competes with Truveta Data or platform or any artifacts included in the platform.
13. Other terms: If I am accessing Truveta other than through a Sponsor, then I agree to the following additional terms. (These are subjects that are covered in the contract between a Sponsor and Truveta for sponsored users.) I will not use any intellectual property of Truveta without Truveta’s prior written consent. I understand that (a) Truveta makes no representation or warranty about its services and disclaims any implied or statutory warranty and (b) Truveta will not be liable to me for lost profits, lost business opportunities, any harm to reputation or any indirect, incidental, consequential, special or punitive damages resulting from my use or inability to use Truveta Services, and Truveta will not be liable to me for any direct damages greater than U.S. $10. I agree to indemnify and hold Truveta harmless from any claim or demand, including reasonable attorneys’ fees, made by any third party due to or arising out of my improper use of Truveta Services, my violation of this Community Standard, or my violation of any rights of another.
14. Notices and how to contact us: I understand that Truveta will provide notices and messages to me either through Truveta or via the contact information I provided, such as my email address. I agree to keep my contact information up to date. I understand that I can review settings in Truveta to control and limit messages that I receive from Truveta. I understand that I may contact Truveta at info@truveta.com or at Truveta Inc., 15800 SE Eastgate Way, Fl 3, Bellevue, WA 98008.
I understand that Truveta or, if applicable, my Sponsor may suspend or terminate my account if I do not adhere to this Community Standard.